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Oley Foundation Board of Trustees 2017


 

Terry Edwards

President
HomeEN Consumer
Port Coquitlam, BC Canada
Tedwards@richardspackaging.com

 

 

Terry Edwards is serving his second term on the Oley board. Terry has been on home enteral nutrition (HEN) since 2005, after having had a tumor removed from the base of his brain. He has attended several Oley conferences and represents the consumer voice at professional meetings. Terry lives in Vancouver, Canada, and travels frequently in the United States and internationally for work.

 

After finding himself on tube feeding, Terry writes, “There came a point when I had to decide how I was going to deal with all this. After six months of taking it easy, I needed to get on with it—the charm of hanging around the house was wearing thin. I gradually went back to my Vancouver office and set my sights on making all my feeding and sundry medical supplies as portable and easy to deal with as possible. Lucky for me, I came across the Oley Foundation Web site and learned some of the positive things I could do to make life simpler.” Thus began his involvement with the Foundation.


 

Jim Senese, BS Pharm, MS

Treasurer
Bolton Landing, NY

jls54@nycap.rr.com


 

Jim Senese has rejoined the Oley Foundation board, having served as Oley’s Treasurer and as a board member from 1997 to 2001. In 2014, Jim became a cancer survivor and a short-term (nine months) enteral nutrition consumer. He has over thirty-five years experience in the medical field with a broad background in practice management, operations, and medical sales.

 

Jim is currently Director of Network Development for the Oncology Circle (a division of Flatiron Health), a data-sharing collaborative of best-in-class oncology practices, dedicated to clinical and operational excellence through the scientific collection and use of data. He is the principal author of the Drug Acquisition Cost Index, a resource for drug cost information, and a contributing author to the National Practice Benchmark Report, which is published in the American Society of Clinical Oncology’s Journal of Oncology Practice.

 

Prior to joining Flatiron, Jim was the Eastern Regional Vice President for US Oncology. In addition he has held various positions with Travacare, Coram, and Caremark. He is a graduate of the Albany College of Pharmacy and Union University with a Masters degree in Health Systems Management, and he maintains his Pharmacist License in New York State. 

 

Jim was a member of the medical team for the Winter Olympics in Lake Placid, New York, and continues to serve in various volunteer organizations. He is a member of the American Society of Clinical Oncology and the Association of Community Cancer Centers. He resides in upstate New York.



 

 

Lynn M. Anderson

Executive Vice President & General Counsel
Holiday Companies
Minneapolis, MN
lynn.anderson@holidaycompanies.com

   

Lynn Anderson is Executive Vice President and General Counsel of Holiday Companies and serves as a member of Holiday’s Executive Committee. Holiday is a Minnesota-based family-owned company principally engaged in the retail petroleum and convenience store business with over 490 Holiday Stationstores in ten states. Holiday is also part owner of Gander Mountain, a hunting, fishing, camping retailer with over 125 stores in twenty-three states. Holiday also has an international technology company which licenses patent technology. 

 

Lynn received her B.A. magna cum laude, Phi Beta Kappa, in 1975 from St. Olaf College in Northfield, Minnesota; her M.A.T. degree in 1976 from Northwestern University in Evanston, Illinois; and her J.D. degree in 1980 from William Mitchell College of Law in St. Paul, Minnesota. Lynn was a lawyer at Lindquist & Vennum, a Minneapolis, Minnesota, law firm until 1988, when she joined Holiday.

 

Lynn’s current volunteer activities include serving on the Board of Trustees of William Mitchell College of Law and serving on the Advisory Council of the new Center for Law and Business at William Mitchell. She also serves on the Board of Directors of the Dakota Jazz Club & Restaurant in downtown Minneapolis. In addition, Lynn mentors college and law school students and volunteers for St. Olaf College with “Ole Law,” “Ole Biz,” and “Ole Med.” She is on the Board of Directors of Global Human Rights for Women, nonprofit organization focused on achieving effective legal reform on violence against women.

 
   

Rhonda Arends

Home PN Consumer

Prior Lake, MN

rhonda.arends@gmail.com

   

Rhonda Arends is from Prior Lake, Minnesota. She has been a home parenteral nutrition (HPN) consumer since 2013. She has been an Oley member for several years, and has attended several Oley conferences. Before joining the Oley board, Rhonda was active with the Crohn’s and Colitis Foundation of America (CCFA) as a support group leader, and for a number of years she served as the education coordinator for the CCFA’s Minnesota/Dakota Chapter.

 

Rhonda received her B.S. from Iowa State University and completed her clinical internship in Medical Technology at St. Luke’s Hospital in Cedar Rapids, Iowa. She worked for several years in the hospital laboratory setting in Rochester, Minnesota, and Denver, Colorado, as a medical technologist (MT, ASCP) specializing in blood bank, chemistry, and hematology. Her areas of interest include nutrition, hydration therapy, and sharing information with other HPN patients.

 
   

 

Elizabeth Bond

Home PN Parent

Levittown, PA

eabondRN@aol.com

 

   

 

 

Debbie Fox, RD

NWTHS
Amarillo, TX
debbie.fox@nwths.com

 

Debbie Fox, MS, RD, LD, graduated from college with the intent to attend medical school. However, her health began to deteriorate shortly after graduation, and she began the very long and difficult journey of searching for a cause. After two years of massive weight loss and multiple mis-diagnoses, she eventually learned she had a severe motility disorder, affecting sections throughout her GI tract. Debbie underwent numerous GI surgeries and developed a deep interest in nutrition. She eventually returned to school to become a registered dietitian (RD).

 

Debbie has worked in the field of dietetics for almost thirty years. For the past twenty years, she has served at the 475-bed tertiary facility of Northwest Texas Healthcare System in Amarillo, Texas, in numerous roles, including critical care/trauma RD, on the nutrition support team, and, currently, in management. She has spoken at local and national conferences for the American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.), local and state dietetic conferences, and Oley Foundation events, and has presented various patient perspective programs for national and international nutrition providers. She has served as president of a local A.S.P.E.N. affiliate, was a nominee for Oley’s Celebration of Life Award, and currently serves on the Dietetic Internship Advisory Committees for both ARAMARK and Texas Tech.


She has greatly enjoyed the opportunities that having a “dual perspective” as patient and practitioner have afforded, including a career in the field of nutrition, learning from other consumers/families, and having opportunities to educate other medical caregivers regarding both the challenges and successes of a home parenteral nutrition (HPN) consumer. This past February, Debbie completed twenty-six years of continuous HPN therapy. “I celebrate every day as a gift,” she says.


Her areas of interest regarding nutrition support include safety issues with PN formulation/ administration in the home and in acute care settings, prevention/amelioration of long-term complications of PN, and improvement in quality of life for home nutrition support patients.


Debbie and her husband will celebrate their fortieth wedding anniversary in January 2016, and although he is an engineer by occupation, her husband has done all her “home nurse care” since she first began PN. They have one son that, in Debbie’s words, “keeps them young.” In her spare time, she loves playing the piano and spending time with her family.
Debbie has been a supporter of Oley for many years. “I am greatly humbled and honored,” she says, “to be chosen to serve on your Board of Directors!”

 
   

Beth Gore, PhD, MBA

Home PN Parent

Riverview, FL

bethgore318@yahoo.com

 

 

 

Beth Gore is a national patient advocate with a background in training, communications, and business. She recently started a job with the Association for Vascular Access (AVA) collaborating with other organizations to help provide safe vascular access. Beth is heading up AVA’s Patient Education and Advocacy Committee. 

 

Beth is a sought-after keynote speaker throughout the health care continuum. She came to Oley initially because of her youngest son, Manny, who lives on home parenteral (IV) and enteral nutrition (tube feeding). Her life mission statement is “Speaking for those who cannot speak for themselves.”

 

Beth also volunteers as an Oley Ambassador. She and her husband have adopted six children. To read more about Beth, see the January/February 2015 LifelineLetter.


 

 

Shirley Huang, MD

Newtonville, MA
shirleyyhuang@yahoo.com

   
 
   

 

Joy McVey Hugick

Home EN Consumer

Atlanta, GA

jhugick@gmail.com

  
   

Joy McVey Hugick joined the Oley Foundation’s Board of Trustees in the fall of 2016. She notes, “I am honored to be part of such an esteemed board.” After serving patient populations during her career in public health at the Centers for Disease Control and Prevention, Joy became a patient herself. In August 2010, Joy had an acute onset of GI symptoms, which was later diagnosed as post-viral gastroenteropathy causing severe dysmotility throughout her gastrointestinal tract. Initially, Joy was on home parenteral nutrition (HPN). She transitioned to home enteral nutrition (HEN) when nutrition support was determined to be a more permanent solution. Joy continues to rely on tube feeding for most of her daily nutrition.

 

After taking the time she needed to adjust to her new normal, Joy attended her first Oley Consumer/Clinician Conference in 2015. Attending this meeting inspired her to become an Oley Ambassador. As an Oley Ambassador, Joy provides peer-to-peer support to consumers and caregivers, as well as sharing the patient/consumer perspective with clinicians, manufacturers, and policy makers. Joy enjoys blending her public health training with her personal experience living with a feeding tube.

 

While Oley is a big part of Joy’s life, she is also active in her local alumnae chapter of Kappa Delta Sorority and volunteers weekly at Emory St. Joseph’s Hospital. Joy holds a BA in speech communication from the University of South Florida and resides in Atlanta with her husband, Brad, and their lab rescue, Buddy. She enjoys volunteering, practicing yoga, reading, cooking, knitting, and spending time with her family.


 

 

Arlet Kurkchubasche, MD, FACS, FAAP

Providence RI Hospital
Providence, RI
AKurkchubasche@USASURG.ORG

 

  

Arlet Kurkchubasche, MD, FACS, joined the Oley Foundation Board of Trustees in the fall of 2014. Dr. Kurkchubasche is a board certified General and Pediatric Surgeon. She practices at Hasbro Children's Hospital in Providence, Rhode Island, where she has been faculty at the Alpert School of Medicine of Brown University since 1997. She received her medical degree from the University of California, Irvine, and then completed her general surgery residency in Portland, Oregon, a research fellowship at the Children's Hospital of Pittsburgh, and a clinical fellowship in pediatric surgery at Cardinal Glennon Children's Hospital in St. Louis.

Dr. Kurkchubasche's interest in intestinal failure developed as a consequence of her involvement with short bowel syndrome patients in Pittsburgh. She was actively involved in clinical and basic science research that related to the developing intestine in the neonate and its host defense, particularly in the setting of necrotizing enterocolitis, the major etiology of intestinal failure in the newborn. This was the foundation for her later work on intestinal adaptation, bloodstream infections and cholestasis, which was enhanced by collaboration with her mentors from St. Louis. Further basic science work on liver injury and liver repair mechanisms continued at Brown University with Dr. Thomas Tracy.

Clinically, Dr. Kurkchubasche's focus has remained on intestinal rehabilitation, looking for the best ways to incorporate both medical and surgical interventions to achieve successful adaptation. She is also the associate program director for the fellowship in Pediatric Surgery at Brown and has championed the need for pediatric surgeons to remain educated and integrally involved in the nutrition care of their patients. We are pleased to have her on the board.


 

 

Ann Michalek, MD

Albany Medical Center
Albany, NY
michala@mail.amc.edu

 

 

 

 

Dr. Ann Michalek specializes in Clinical Nutrition at Albany Medical Center, Albany, New York. She completed her fellowship with Oley’s co-founder, Lyn Howard, MD, and assumed responsibility for many of Dr. Howard’s patients when Dr. Howard retired in 2007.

 
   

Manpreet Mundi, MD

Mayo Clinic

Rochester, MN

mundi.manpreet@mayo.edu

   

Dr. Mundi graduated cum laude from the University of California, San Diego, with a double major in psychology and chemistry. He obtained a degree of Medical Doctor from the Keck School of Medicine at the University of Southern California. Dr. Mundi completed a residency program in internal medicine followed by a fellowship in endocrinology at the Los Angeles County–University of Southern California Medical Center.

 

After completing his fellowship, Dr. Mundi joined the Mayo Clinic Division of Endocrinology as an NIH training grant fellow in Dr. Michael Jensen’s lab with a research focus in fatty acid metabolism and obesity. Dr. Mundi subsequently joined the clinical staff at Mayo Clinic as a consultant in the Division of Endocrinology nutrition core group. His clinical focus is on obesity and malnutrition with a special interest in home and inpatient nutrition support.

 

Dr. Mundi is currently an Associate Professor of Medicine and holds the leadership positions of Community Core group chair and Outpatient Nutrition Core group chair. He is also the medical director of the Home Enteral Nutrition Program and the associate program director of the Home Parenteral and Enteral Nutrition (HPEN) Program. The HPEN program at Mayo Clinic assists 700 to 800 patients per year in initiating parenteral (IV) and enteral nutrition (tube feeding) and typically follows 1,700 to 2,000 patients annually who receive nutrition support at home. Within the HPEN program, Dr. Mundi takes a very active role in research with the goal of continuing to improve the quality of home nutrition support.

 
   

 

Laurie Reyen, RN, MN

UCLA Medical Center

Los Angeles, CA

lreyen@mednet.uicla.edu

   

 

 

Lauren Schwartz, MD

Concorde Medical Group
New York, NY
laurenkschwartz@gmail.com

   

 

 

Bob and Mary Smithers

HomePEN Consumer/Caregiver
Gainesville, FL
Mary: marysmithers944@yahoo.com
Bob: smithersb@yahoo.com

 

Mary and Bob Smithers joined the Oley Foundation Board of Trustees in the summer of 2014. Together, they bring the perspectives of consumer and caregiver to the board. Bob and Mary have been members of the Oley Foundation since 2002, and have served as Oley Ambassadors since 2011. They live in Gainesville, Florida.

 

Mary was diagnosed with idiopathic gastroparesis in 1985. In 1998, after her third episode, her stomach no longer emptied enough for her to sustain herself by eating orally. She went home on parenteral nutrition (HPN) for several short periods, but was taken off due to repeated infections. Instead, a G-J tube was placed and Mary began tube feeding. After bouts with dehydration, her doctor recommended a daily liter of IV fluid, which was subsequently changed to lactated ringers (LR). She adds multivitamins and trace elements to the LR three times per week. In addition, in 2001 Mary had a gastric stimulator placed, which helps reduce the feeling of nausea. She is currently on her third gastric stimulator. Mary still uses LR today to stave off dehydration and balance electrolytes, and remains on tube feeding, using a pump 16-18 hours a day. She supplements her tube feed formula with Proteinex daily. She eats orally only for taste and only in very limited quantities and uses her G-tube to vent. She currently has a PICC for administering the lactated ringers, and has had Power Ports in the past.

 

Mary retired on disability in 1999 from her job as a speech therapist at a special needs school. Bob is a retired high school math teacher. He is also retired military, having served three years on active duty and more than twenty years in the Florida Army National Guard.


Board Advisors

   
     

 

 

Lyn Howard, MB, FRCP, FACP

Medical Director, Co-Founder

Poestenkill, NY

  Dr. Lyn Howard graduated from Oxford University England in 1964. She completed her internship and residency in Kansas, and a fellowship in Clinical Nutrition and GI at Vanderbuilt University. She came to Albany Medical Center to head the brand new Clinical Nutrition Department in 1973, and shortly afterwards sent her first (and one of the world’s first) patient home on TPN.

Managing patients on this new, complex therapy was exciting and very time consuming. She soon realized patients needed information and support beyond that which their physicians could provide. So together with Clarence “Oley” Oldenburg, Dr. Howard established the Oley Foundation in 1984.

Dr. Howard is widely published in the field of nutrition support and has spoken at countless consumer and clinician meetings. She has received many honors for her work, including having an endowed chair named after herself and long time HPN patient and friend, Donald Young.

She has been a tireless advocate for HomePEN patients, and encourages clinicians, caregivers and patients to empower everyone on HPEN so they might reach their fullest potential.

 

 

Darlene Kelly, MD, PhD

Science & Medicine Advisor
Rochester, MN 

 

 

After retiring from her twenty-two-year role as Medical Director for the Home Parenteral Nutrition program at the Mayo Clinic in Rochester, Minnesota, in 2012, Dr. Kelly was appointed to the Oley Foundation staff where she has actively guided research projects and provided advice on medical-related content for publications. Previously she supported Oley as a board member and research committee chair for more than eleven years. She has a doctorate in nutrition, and a medical doctorate with a residency in internal medicine and a fellowship in gastroenterology and GI research. Her areas of interest include: HPN, short bowel syndrome, and malabsorption.


     

 updated 5/25/2017

more Calendar

9/16/2017
Oley Regional Conference - Phoenix, Arizona

This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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