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News & Press: Stories about People on Nutrition Therapy

Riding the Tube

Thursday, March 2, 2017   (0 Comments)
Posted by: Andrea Guidi
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By: Ruth Drake, Mummy to Elin, 8,  who has Cerebral Palsy

www.huffingtonpost.co.uk, February 28, 2017

 

So it was recently Tube Feeding Awareness Week and in the malaise of awareness weeks that the double-edged sword of social media has brought to us, this is one I could most definitely get behind. When I was pregnant I thought the only feeding choices for my baby were breast or bottle. Quite a contentious debate amongst midwives and mums, I figured I would breastfeed if I could, but not beat myself up if I couldn’t. Sorted.

Turns out I never got the chance to do either since Elin’s brain damage at birth affected her suck and swallow reflex so profoundly that she became and remains a tube-fed little warrior. I hated this fact for so long, that the bonding of feeding was yet another thing that had been robbed from me as a first time mum. I seriously couldn’t even look at babies feeding via breast or bottle, I couldn’t beat the jealousy, it killed me.

To read more about Ruth and Elin click here.


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9/16/2017
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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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