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Latest News
Monday, May 7, 2018   (0 Comments - view/add)
Patients with a rare stomach disorder express alarm as TV news promotes nerve...... »
Patients with gastroparesis -- which can be caused by damage to the vagus nerve -- expressed alarm about news coverage of...
Thursday, May 3, 2018   (0 Comments - view/add)
ASPEN Releases Videos on Placement of NG Tubes »
Videos for caregivers and health-care providers on placing and verifying placement of NG tubes now available as part of Ne...
Thursday, April 26, 2018   (0 Comments - view/add)
ATLAS Launch: What more can we do to support chronic intestinal failure patients? »
ATLAS Launch: What more can we do to support chronic intestinal failure patients? A discussion on rare diseases, European...
Wednesday, April 25, 2018   (0 Comments - view/add)
Could an IV vitamin drip be fatal? »
Experts warn the health kick inspired by stars including Kelly Osbourne and Andrea Mclean can have serious side effects -...
Tuesday, April 24, 2018   (0 Comments - view/add)
Boy, 5, becomes violently ill every single time he eats »
By: Harley Tamplin metro.co.uk, 4/24/18   A five-year-old boy suffers from a mystery illness that mean...
Wednesday, April 18, 2018   (0 Comments - view/add)
The missing link: Why disabled people can't afford to #DeleteFacebook »
By: Frances Ryan www.theguardian.com, April 4, 2018   Revelations about internet companies being negli...
Wednesday, February 21, 2018   (0 Comments - view/add)
Congressman Brian Fitzpatrick Recognizes A. Brooks Construction Kanga Roofs Holiday Roof Giveaway »
www.digitaljournal.com, 2/21/18   This press release was orginally distributed by SBWire Bristol, PA --...
Tuesday, January 23, 2018   (0 Comments - view/add)
IV bag shortage leads MGH to use Gatorade to hydrate patients »
By: Jadiann Thompson whah.com, 1/18/18   BOSTON (WHDH) — The United States is dealing with an IV bag s...
Tuesday, January 23, 2018   (0 Comments - view/add)
Home Care Agencies Often Wrongly Deny Medicare Help To The Chronically Ill »
By: Susan Jaffe www.npr.org, 1/17/18     Colin Campbell needs help dressing, bathing and movin...
Thursday, December 28, 2017   (0 Comments - view/add)
Have bowel problems? New York now requires businesses to let you use the bathroom »
  Have bowel problems? New York now requires businesses to let you use the bathroom By Marnie Eisenstadt ...
Thursday, November 30, 2017   (0 Comments - view/add)
Two Councils Say: Vote House Bill Down, Start Over »
National Council of Nonprofits   Two Councils Say: Vote House Bill Down, Start Over The National Council of...
Thursday, November 30, 2017   (0 Comments - view/add)
News stories - Children's Miracle Network Hospital Hero: Madelyn »
By Brittany Lake WXOW.com, 11/24/17   Heroes come in all shapes and sizes. But what they all have...
Wednesday, November 29, 2017   (0 Comments - view/add)
This Rockport trio has holiday spirit despite sad circumstances »
Tom Whitehurst Jr. Corpus Christi Caller-Times, 11/22/17   ROCKPORT - The facts would add up to a sad...
Wednesday, November 22, 2017   (0 Comments - view/add)
Amino Acids Shortage Update »
ASPEN (American Society for Parenteral and Enteral Nutrition)   ASPEN continues to advocate for our patients...
Wednesday, November 22, 2017   (0 Comments - view/add)
Battling an invisible illness »
By Kimberly LaRussa The Buffalo News, 11/19/17   Every morning Diana Donnarumma of Buffalo wakes up an...
Tuesday, November 14, 2017   (0 Comments - view/add)
Blacktown family finds courage amid complex food allergies »
By: Harrison Vesey Blacktwonsun.com, 11/07/17     Maureen Moloney will never forget the moment...
Tuesday, October 31, 2017   (0 Comments - view/add)
Debilitating disorders prevents toddler eating »
By: Georgia Forrester Stuff.co.nz, 10/29/17     Luca Dalzell has never eaten a full meal in hi...
Friday, October 13, 2017   (0 Comments - view/add)
October 15th Marks 1st World Home Artificial Nutrition (HAN) Day »
  PACIFHAN has dedicated this day as one to celebrate home nutrition support (or home artificial nutrition as it...
Wednesday, October 11, 2017   (0 Comments - view/add)
Clarence native waits for lifesaving intestinal transplant »
By: Ethan Powers Clarence Bee, 10/11/2017   When Diana Donnarumma was a junior at the University of Mi...
Tuesday, October 10, 2017   (0 Comments - view/add)
Community joins to renovate home of chronically ill toddler »
By: Leah Willingham Concord Monitor, 10/07/17   Two-year-old Charlotte Coe sat patiently while her...
Tuesday, October 10, 2017   (0 Comments - view/add)
Britain's bravest children: Meet some of the winners of the 2017 Wellchild Awards »
By: Catherine O'Brien You Magazine, 10/09/17   The WellChild Awards on 16 October will celebrate B...
Tuesday, October 10, 2017   (0 Comments - view/add)
Quadriplegic refused service to Gloria Jean's because he has to drink coffee through a tube ... »
Quadriplegic refused service at Gloria Jean's because he has to drink coffee through a tube and 'customers find it "UNSIGH...
Thursday, October 5, 2017   (0 Comments - view/add)
Oley Foundation given TSA Award »
The Oley Foundation was given the Transportation Security Administration Disability and Multicultural Coalition’s Comm...
Tuesday, September 26, 2017   (0 Comments - view/add)
First of its kind nursery provides specialist day care for kids with complex needs »
By: Jenny Lee The Irish News, 9/26/17   FINDING reliable, quality child care can be a difficult and st...
Tuesday, September 12, 2017   (0 Comments - view/add)
From premature baby to bubbly pre schooler - Amelia prepares for her first day at nursery »
From Premature baby to bubbly preschooler - Amelia prepares for her first day at nursery in Littleport   By:...
Thursday, August 24, 2017   (0 Comments - view/add)
Photographer grants disabled kids their wish of becoming a superhero »
www.news.com.au; August 24, 2017   THIS photograph of six children dressed as superheroes will make your day....
Thursday, August 24, 2017   (0 Comments - view/add)
Nurse Shortage Puts Vermont Parents on the Hook for Kids' Care »
By: Alicia Freese www.sevendaysvt.com, August 16, 2017   Natalie Briggs spent the first six months...
Thursday, August 24, 2017   (0 Comments - view/add)
Living Donor Saves 8-Year-Old Leta »
By: Jennifer Keirn Clevelandmagazine.com, August 22, 2017   Diagnosed with a rare condition, she n...
Tuesday, August 22, 2017   (0 Comments - view/add)
Medicare Patients Could Gain Right to Appeal “Observation Status” and Avoid Large Medical Bills ​ »
Eighty-four-year-old Nancy Niemi of North Carolina was hospitalized for 39 days earlier this year after her doctor sent he...
Monday, August 21, 2017   (0 Comments - view/add)
Food and Drug Administration Reauthorization Act is Signed into Law »
  Oley joins NORD in acknowledging President Trump for signing the Food and Drug Administration Reauthorization...
Thursday, August 3, 2017   (0 Comments - view/add)
Stomach condition often misdiagnosed »
Bonner County Daily Bee, 8/02/17   It’s Gastroparesis Awareness Month! If you just said, “What?” You’re not a...
Thursday, August 3, 2017   (0 Comments - view/add)
Gastroparesis requires more awareness, better treatments »
Healio, 8/02/17   Patients with gastroparesis may experience symptoms for 5 years before they receive an accu...
Thursday, July 27, 2017   (0 Comments - view/add)
Jim Gaffigan Pens Emotional Facebook Post to Wife Recovering from Brain Surgery »
By: Elise Sole Yahoo Beauty, www.yahoo.com, 7/26/17   Three months after his wife, Jeannie, underwent...
Monday, July 24, 2017   (0 Comments - view/add)
Osmond boy awaiting multi-organ transplant »
By: Kathryn Harris Norfolk Daily News, 7/22/17   OSMOND — Every aspect of life in Danny Anderson’s fam...
Thursday, July 20, 2017   (0 Comments - view/add)
Dating while ill is not ill-advised »
By: Liz Montgomery AM NEW YORK, 7/05/17   One thing Netflix’s show “Girlfriends’ Guide to Divorce” doe...

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This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.

 

Updated in 2015 with a generous grant from Shire, Inc. 

 

This website was updated in 2015 with a generous grant from Shire, Inc. This website is an educational resource. It is not intended to provide medical advice or recommend a course of treatment. You should discuss all issues, ideas, suggestions, etc. with your clinician prior to use. Clinicians in a relevant field have reviewed the medical information; however, the Oley Foundation does not guarantee the accuracy of the information presented, and is not liable if information is incorrect or incomplete. If you have questions please contact Oley staff.
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